Kiran is back to himself. He bounces continuously whether he is sitting, standing or lying down. Commando crawling is his favourite way of getting around although mainly in circles still. He is beginning to straighten his arms and push his bottom up. We don't think it will be long before Kiran masters the art of crawling. We are very thank ful that Kiran had his operation as he can't get tangled in the tubes.
On the menu tonight was partridge. Very yummy. I did it in red wine and garlic with a huge amound to roast veges including butternut, kumera, beetroot and of course potato.
It did get cold today. They were predicting -6 in some areas. Fortunately it didn't get that cold. If anyone has any bright ideas on how to keep gloves on Kiran's hands please let us know. I have fixed the hat problem by investing in some hoodies (from good old Primark).
Tomorrow we are off to Harrods where Kiran will have his first Santa encounter. We figure he will either be nervous and cry (like his father) or pull Santas beard off (he is intrigued by everybodies face, in fact my face has got several scratches on it.)
Have a look at the www.reecesrainbow.com you will notice that there are a whole heap of kids from all over the world heading for new lives because their forever families have found them. This is because of all of you that have looked at the Angels and sponsored them. Thanks so much.
Saturday, 24 November 2007
Sunday, 18 November 2007
Where did that week go?
We have a truly amazing little boy. It is hard to believe that he is almost back to his normal self and not even 2 weeks after his four hour operation. He is bouncing around the floor. He is doing everything he was except rolling onto his stomach (I can't blame him for not wanting to roll onto his tummy - ouch) The wound is healing really well.
This week Kiran has 3 appointments he is having his 8 month check again as I didn't feel like the first one was done properly. On Tuesday we are off to Chelsea and Westminster for Grant the Gastro nurse to check out Kiran's progress and then Wednesday back again for Kiran to have his swallow test done to see if he can have solids.
Kiran has been doing really well on his bolus feeds he is tolerating 55mls straight into his stomach instead of the 55 mls over an hour through the machine. It is much quicker and means there are no tubes for Kiran to play with and wrap around himself. Yippee!
Ian went to a band contest in Leicester today. They came second. They are very happy with the result.
It has turned very cold. It was -2 today and raining. Come on New Zealand and warmer weather.
Thank you to all the people that have supported Reece's Rainbow. If you haven't already watched the videos do so.
This week Kiran has 3 appointments he is having his 8 month check again as I didn't feel like the first one was done properly. On Tuesday we are off to Chelsea and Westminster for Grant the Gastro nurse to check out Kiran's progress and then Wednesday back again for Kiran to have his swallow test done to see if he can have solids.
Kiran has been doing really well on his bolus feeds he is tolerating 55mls straight into his stomach instead of the 55 mls over an hour through the machine. It is much quicker and means there are no tubes for Kiran to play with and wrap around himself. Yippee!
Ian went to a band contest in Leicester today. They came second. They are very happy with the result.
It has turned very cold. It was -2 today and raining. Come on New Zealand and warmer weather.
Thank you to all the people that have supported Reece's Rainbow. If you haven't already watched the videos do so.
Monday, 12 November 2007
We're Back!
Kiran's operation was a complete success. The surgeons and everyone involved were very impressed with how Kiran recovered. They say he is almost the quickest ever. He would have been if the weekend hadn't have been in the way.
He ended up having a Nissens Fundoplication via keyhole surgery and then the G- tube was inserted laproscopically using a camera down oesaphagus. While using the camera they said they could see the Nissens procedure from the inside and how well it looked. It all took about 4 hours to do. When Kiran was in recovery we were taken down to see him. Kiran looked up at Ian and gave him a smile before going back to sleep. He had his g-tube which was connected to a draining bag, 1 canula in each foot (for morphine and antibiotics etc) He also had monitors for hearbeat, oxygen etc. From recovery Kiran went to the High Dependcy Unit because he small and also had a nurse and dr in the room with him. I wasn't allowed to stay in the HDU because there wasn't any room for parents so I stayed in the hospital hotel for the night. At 7a.m. when I got down Kiran was being moved back to the ward as he was doing really well. He continued to do well and by the afternoon when Ian got in to visit most of the wires etc had gone. By Thursday evening Kiran was only on paracetamol for pain relief. He continued to do really well.
On the first evening Ian and I were watching Kiran sleep and both jumped as he lifted his hands to his face. Then we both realised there was no need as there is no nasal gastro tube anymore.
Now Kiran is almost back to his oldself. It is only 5 days since his operation.
I am in need of a lot of sleep and have a bit of a cold but other than that I am great.
He ended up having a Nissens Fundoplication via keyhole surgery and then the G- tube was inserted laproscopically using a camera down oesaphagus. While using the camera they said they could see the Nissens procedure from the inside and how well it looked. It all took about 4 hours to do. When Kiran was in recovery we were taken down to see him. Kiran looked up at Ian and gave him a smile before going back to sleep. He had his g-tube which was connected to a draining bag, 1 canula in each foot (for morphine and antibiotics etc) He also had monitors for hearbeat, oxygen etc. From recovery Kiran went to the High Dependcy Unit because he small and also had a nurse and dr in the room with him. I wasn't allowed to stay in the HDU because there wasn't any room for parents so I stayed in the hospital hotel for the night. At 7a.m. when I got down Kiran was being moved back to the ward as he was doing really well. He continued to do well and by the afternoon when Ian got in to visit most of the wires etc had gone. By Thursday evening Kiran was only on paracetamol for pain relief. He continued to do really well.
On the first evening Ian and I were watching Kiran sleep and both jumped as he lifted his hands to his face. Then we both realised there was no need as there is no nasal gastro tube anymore.
Now Kiran is almost back to his oldself. It is only 5 days since his operation.
I am in need of a lot of sleep and have a bit of a cold but other than that I am great.
Sunday, 4 November 2007
Gymbo, Kiran and Ian
Today we used the last pass for Gymboree. Kiran showed Ian how much fun it was. He went on the slides, barrels, spinning tops, ball tunnel etc. (Kiran that is not Ian). Typically we took loads of photos.
Tomorrow is a hectic day getting ready for hospital on Tuesday so I am going to post some photos and then off to bed.
Tomorrow is a hectic day getting ready for hospital on Tuesday so I am going to post some photos and then off to bed.
Saturday, 3 November 2007
Fireworks and Ops
After Sing and Sign this morning we got home to a large envelope. It was a date for Kiran's surgery. It wasn't the 6 weeks warning we were told. It wasn't even 6 days notice. He will be admitted this Tuesday and the op is scheduled for Wednesday. We don't have a time or any other information yet.
Another first for Kiran, tonight he attended his first fireworks display. He loved it and didn't even fidget or fuss at the huge bangs. He followed the colourful fireworks and was watching them even as we walked off and they were off in the distance.
Another first for Kiran, tonight he attended his first fireworks display. He loved it and didn't even fidget or fuss at the huge bangs. He followed the colourful fireworks and was watching them even as we walked off and they were off in the distance.
Friday, 2 November 2007
This Week
Kiran has had a lot of firsts this week. The biggest and most exciting is that he was allowed to try solids. They recommended carrots so we tried. It wasn't successful. Choking, gagging etc The next day we tried him on baby rice and neocate. I made the mistake of trying it and it was awful! Anyway Kiran didn't mind and enjoyed it. Today I mixed the baby rice with water. It was all eaten in about 5 minutes. I had to stop him blowing raspberries while eating it but he did really well.
Halloween was on Wednesday. Kiran wore his Little Devil outfit. Everywhere we went people commented and oooohed and aaaaahed. Eventually I had to admit that I had bought it for 75p from the charity shop( I love charity shops - NZ needs to get some). But that wasn't the bit I had to admit to, I thought it was a Santa Suit until I got it home. Ooops. We only had 10 Trick or Treaters at the door. So there are an awful lot of chocolates left over - shame!
Do you remember the image of Kiran being a dog chasing his tail eg going around in circles (but only in a clockwise direction? He can now turn the other way. He manages to get everywhere he wants (and I don't) by commando crawling in circles.
Yesterday Kiran had his 8 month check. He now weighs 7.6kg which is 16 pounds something. He is going to be referred for his lazy eye. We got a pack of books and brochures on how to read to your child! Kiran loves his books and Ian reads to him everynight as part of his bedtime routine. The Health Visitor was quite happy with him and using his corrected age (eg taking into account being prem) he is advanced in some areas and on target in all areas.
Due to new health and safety regulations (boy, you gotta love them - aaaaahhhh) all of Kiran's medical equipment has been changed to screw tops. The only positive is that they are purple.
I was very proud to see my friends embrace the Reeces Rainbow Charity www.reecesrainbow.com that I support. THANK YOU for giving these great kids a chance at a Forever Family. We still think that Kiran looks like Phil (if only there was a way to adopt him)
Finally, Kiran has been an absolute delight. He smiles, gurgles, has developed a sense of humour and been a trouper. Have I mentioned how much we love him?
Halloween was on Wednesday. Kiran wore his Little Devil outfit. Everywhere we went people commented and oooohed and aaaaahed. Eventually I had to admit that I had bought it for 75p from the charity shop( I love charity shops - NZ needs to get some). But that wasn't the bit I had to admit to, I thought it was a Santa Suit until I got it home. Ooops. We only had 10 Trick or Treaters at the door. So there are an awful lot of chocolates left over - shame!
Do you remember the image of Kiran being a dog chasing his tail eg going around in circles (but only in a clockwise direction? He can now turn the other way. He manages to get everywhere he wants (and I don't) by commando crawling in circles.
Yesterday Kiran had his 8 month check. He now weighs 7.6kg which is 16 pounds something. He is going to be referred for his lazy eye. We got a pack of books and brochures on how to read to your child! Kiran loves his books and Ian reads to him everynight as part of his bedtime routine. The Health Visitor was quite happy with him and using his corrected age (eg taking into account being prem) he is advanced in some areas and on target in all areas.
Due to new health and safety regulations (boy, you gotta love them - aaaaahhhh) all of Kiran's medical equipment has been changed to screw tops. The only positive is that they are purple.
I was very proud to see my friends embrace the Reeces Rainbow Charity www.reecesrainbow.com that I support. THANK YOU for giving these great kids a chance at a Forever Family. We still think that Kiran looks like Phil (if only there was a way to adopt him)
Finally, Kiran has been an absolute delight. He smiles, gurgles, has developed a sense of humour and been a trouper. Have I mentioned how much we love him?
Thursday, 1 November 2007
Kiran's Twin
Differences in Lives,
Kiran gets a cuddle everyday (and not just one) Phil doesn't even know how good it is to have a cuddle.
Kiran has enough food everyday (and it's a variety and interesting) Phil doesn't always have enough food and sometimes goes to sleep hungry.
Kiran has a lovely decorated cot and a musical mobile that puts him to sleep at night. Phil cries himself to sleep.
Kiran has so many clothes he didn't even get to wear some of them before he grew out of them. Phil wears the same clothes day in and day out.
Kiran has so many toys that he needs yet another toy box. Phil amuses himself in his cot all day.
When Kiran turns 4 we will be planning his move to school etc. When Phil turns 4 he has the treat of being moved to a mental institution where he can not be adopted.
Kiran has two parents that love him very much. Phil deserves this chance too!
Every child on the Reece's Rainbow website deserves to be part of a Forever Family.
Please help us to help them visit www.reecesrainbow.com
For a christmas present that will make a difference visit http://www.reecesrainbow.com/angeltree.htm
Kiran gets a cuddle everyday (and not just one) Phil doesn't even know how good it is to have a cuddle.
Kiran has enough food everyday (and it's a variety and interesting) Phil doesn't always have enough food and sometimes goes to sleep hungry.
Kiran has a lovely decorated cot and a musical mobile that puts him to sleep at night. Phil cries himself to sleep.
Kiran has so many clothes he didn't even get to wear some of them before he grew out of them. Phil wears the same clothes day in and day out.
Kiran has so many toys that he needs yet another toy box. Phil amuses himself in his cot all day.
When Kiran turns 4 we will be planning his move to school etc. When Phil turns 4 he has the treat of being moved to a mental institution where he can not be adopted.
Kiran has two parents that love him very much. Phil deserves this chance too!
Every child on the Reece's Rainbow website deserves to be part of a Forever Family.
Please help us to help them visit www.reecesrainbow.com
For a christmas present that will make a difference visit http://www.reecesrainbow.com/angeltree.htm
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